Did you enjoy your summer?



Hello everyone,

as I promised here I’m, to tell you about my summer and above all to know about yours.

My summer started just after they let us free after the lockdown, I moved to my grandma beach house and I’m still here and I’m working from here.

No bad at all, have the opportunity to jump into the water everyday after 6 pm. During my real vacation I went to Abruzzo region and I enjoyed a lot walking and exploring new historical towns.

Because remember exercise is good for people with our diseas. So my summer was very simple, working from home, walking swimming and enjoying my family!

What about yours?

Comment here ūüôā

Talking about me and AS



About 2 months ago, a person that I like and respect a lot contacted me, he wanted me to give a speech to a public of about 300 people. But he was smart he didn’t tell me that my audience was so big, and he knew I wasn’t talking anymore so often in public.

I accepted his invitation even it was hard time for my health, the comorbidities for my AS are bothering me a lot in this period, but I wasn’t afraid, and I faced 300 people in a conference room I went through a guided speech interview and I talk about me and my disease. It was the first time in front of my husband, that was there.

Some tears came up when I remembered the hard time with the pain, and the fear of do not walking and be not any more auto sufficient. I talked to that public and the public responded good people came over to talk to me asking me question, I went straight to their feeling just being me and tell them about my story.

This is something I wanted to share, and I want all of you that land into my page to do not be afraid and fight the diseases. Fight, we have treatments, but above all we are lucky because we can still do many things.

Enjoy Life.


5 Tips to travel this summer for people with rheumatic diseases

woman meditating on tropical beach in the caribbean

Vacation for ¬†everyone is relax, for us with our diseases must be only ¬†relax…. is that true?

The truth is  that a vacation has to be spent  at the best, no matter if  we go  to the beach, to the mountain, to visit nice  cities  around the world.

What  do we have to remember:

  • Don’t forget ¬†your medication and ¬†have a certificate that state you have to take them. There are some airlines specially low cost that can give you problems in case you carry biologics treatments. Remember ¬†your medications and all your papers must ¬†travel ¬†with your carry on.
  • If you ¬†book a long trip make ¬†sure you can reach your final destination maybe in more than one step ( i.e. I had to go ¬†from south Italy to Guam I decided to have ¬†a stop over in South Korea so I rested and I visited Seul and follow ¬†my trip) Instead ¬†to travel more than 26 hours ¬†I traveled half.
  • If you travel by plane or by train choose an aisle it will be ¬†easier ¬†for you to stand up and move. You know ¬†you cannot be in the same position for long.
  • Ask ¬†for ¬†assistance at the airport at the train station, where ever you are and you go ¬†is your right they will make your ¬†trip easier and help who is traveling with you do not ¬†get stressed during ¬†the vacation.
  • Make plan before ¬†to enjoy every single day of your free time. ( make sure all the opening and closing time, what to see, where to eat).

Ok then so now ¬†you only need ¬†your ticket and you are ready ¬†to go… Enjoy your summer!

9 -Tips for Traveling With Arthritis

Whether you’re traveling for business or pleasure, you know arthritis is one thing you can’t get away from. But it doesn’t have to derail your travel plans.

Try these tips for taking care of your Arthritis and avoiding joint pain while you’re on the road.

Traveling With Arthritis: Before You Go

1. Do your homework. Find out as much as you can about your destination and plan all the details you can ahead, including what places you’ll go, how you’ll get there, and what your travel companions can do when you need a rest.

2. Time it right. Choose a time when you are most likely to be feeling your best. If you are prone to flares during the heat of the summer or the hustle and bustle of the holidays, for example, try to avoid traveling during those times.

3. Don’t rush. Although vacations can be fun and restful, they can also be stressful. Try to plan an extra day at the start of your vacation to prepare and another at the end to rest and recuperate before going back to work or regular activities.

4. Ask about immunizations. If you will be traveling overseas, ask your doctor about any immunizations you may need. Keep in mind that some immunizations are not advised if you are taking medications that suppress your immune system.

What to Pack

5. Select the right suitcase. Purchase a suitcase or carry-on with wheels, and push instead of pulling it. Use both hands. Doing so will conserve energy and avoid strain on your hands and shoulders.

6. Pack light. A lighter suitcase is easier to push — and lift, if necessary. If you find that you must lift your suitcase — into your car trunk or the overhead bin on a plane, for example — find someone who can help.

7. Don’t forget your health info. Write out a brief medical history and list of medications you take. Include contact information for your primary care doctor and rheumatologist, as well as your health insurance information.

8. Mind your medications. Pack more medicine than you think you will need and divide your medications among your different bags. If one bag is lost, you should still have enough medicine to get by. Leave a copy of your prescriptions at home with a friend or family member. If you lose your medications or are gone longer than expected, have them fax you your prescription.

On Your Way

9. Don’t just sit there. Sitting for hours in a car, plane, bus, or train can lead to stiff joints. When driving, stop once an hour to stretch and walk. When flying or riding a bus, try to get an aisle seat so you can stretch and get up and walk.

HOW TO TRAVEL WITH ARTHRITIS Tips for who live in USA… What about European?



Hello Everyone,

making my on line search I faced the SATH website  Society of Accesible Travel & Hospitality a Non Profit organization in USA.

I’m here reporting a chapter dedicate to¬† people¬† with arthritis. I wish you a good reading.

And I hope this can help you ….

How To Travel with Arthritis
People who suffer from arthritis are not a single group, but they do have certain characteristics in common resulting from their disease such as pain in the areas affected, frustration due to limitations of movement, and the inconvenience of not being able to move about freely. Some of those affected have localized pain and inflammation in their hands, hips, knees, etc., while others have more generalized symptoms which require them to use a wheelchair or a scooter. However, whatever his or her condition, anyone with arthritis can today expect to be able to travel, so long as they make practical plans well in advance.*

*Note: Since 1990, all handicapped travelers in the United States are protected by law from discrimination with respect to travel, accommodations, and most other travel arrangements.

It is important for people with arthritis to come to terms with the limitations resulting from their condition and to plan their travel so as to avoid stress and physical fatigue. By finding a travel agent who understands their condition and will work with them to make all arrangements, they can get the professional help they need at a very small cost since travel agents receive commissions from airlines, hotels, etc. However, special services, expensive phone calls, fares, etc. will have to be paid for.

Making Travel Arrangements
First, choose your vacation destination with care, ensuring that the hotel is accessible even if you are not in a wheelchair, so as to avoid unnecessary steps and other obstacles. Also make sure that its environment is suitable, with plenty of shade and pools and other outdoor facilities which are not too far for you to get to. If you intend to take excursions, make sure that there will be transportation available (with lifts or ramps if you are in a wheelchair) and that there are no steps or steep paths to climb.

Air Travel. Your travel agent will make all your travel plans and advise you on the most suitable flights. If possible, take a flight which is either nonstop or direct (where you can stay on the planle at any intermediate stops), since changing planes at a hub airport can be very stressful and physically taxing.

Make sure your travel agent enters all important details in his reservation computer so as to avoid misunderstandings, and check the computer printout of your itinerary. Include the following information, if relevant:
–If you need a wheelchair for transport to and from the plane. Remember that if you have to change planes en route, you will need to arrange for a wheelchair then, as well.
–If you are travelling with your own wheelchair, make sure that the type is noted. If it is electric, a gel or non-spillable battery is best (lead/acid batteries call be dangerous and require special handling which means being in the airport at least 3 hours before flight times and a delay on arrival). Remove any projecting removable parts from the wheelchair and keep them with you. Carefully label the chair with your namne and address and destination airport. Ask for the chair or scooter to be loaded “last on/first off” to avoid delays.
–If you have a crutch or cane, you can take these aboard the plane with you. They must be carefully stowed for takeoff and landing but can be used in flight.

Transfers. Check whether there is suitable transport between the destination airport and your hotel. If not, check for special taxi or van service whiich is available at many large resort areas.

Rail Travel. All Amtrak trains have at least one accessible car (usually near the dining car). Details on their handicapped services and facilities are provided in their free booklet, Access Amtrak. When booking, make sure the company knows you have a disability and, if necessary, request a wheelchair to take you to and from the train. Your travel agent can make these arrangements. Otherwise, contact Arntrak at (800) 872-7345. With regard to dining on board, the train attendant will bring you a meal if you require it and cannot walk in a moving train.

Note: Trains other than Amtrak may not have special accessible cars, so check before departure about boarding and seating.

Bus Travel. If you intend to travel by bus, Greyhound, the only remaining nationwide carrier in the U.S., will give you every assistance, but does not have buses with lifts. For a copy of their brochure for handicapped travelers, Greyhournd Travel Policies, call (800) 752-4841 or (800) 345-3109 (TDD). To arrange assistance, they ask that handicapped passengers notify them 48 hours in advance. Those traveling without a companion should call the above toll-free numbers. Anyone requiring a companion (who travels free of charge) should ca11 (800) 231-2222.

Medication. If you use prescription drugs, take a supply adequate to the length of the trip. Pack them in your hand baggage in the event that your checked luggage is lost or delayed. If you need to keep medication refrigerated, the aircraft crew or the dining car staff on a train will put them in their refrigerator. But make sure you retrieve them at the end of your journey. It may be better to place them instead in a vacuurn flask or similar container. Finally, take copies of your doctor’s prescriptions with you in case of accidental loss or to show Customs’ officials if you are going abroad.

Clothing. If you are going to a resort area which is hot, take light, loose, long-sleeved clothing to avoid discomfort and a light hat with a wide brim. You should also take a warm coat for the evenings, as many places are hot during the day and cool at night. Check the climate and seasonal temperatures before packing.

Source SATH.org

Fit For Travel

By searching with the follow words  travel with rheumatic  diseases so many articles came up on google, one is  FIT FOR TRAVEL

I was so¬† happy I thought the finally someone¬† had a chance to¬† write a guide tips¬† for¬† people with RMD’s

But not on this¬† page¬† under the¬† voice RMD’s¬† only come up this :

Ask your doctor whether the climate to be expected in your destination might cause a new onset of your illness. One of the medications used for rheumatism (primarily chronic polyarthritis) is Chloroquine. An adjustment in the dosage of this familiar medication might be necessary to provide efficacious protection from malaria. When traveling to malaria zones, where the resistance situation of the parasites and the infection pressure indicate a malaria prophylaxis with Mefloquine, the Mefloquine must not be combined with your Chloroquine medication. The combination of Chloroquine and Proguanil is highly effective and easily tolerated.

Which is not¬† bad is not was I looking for….. day by day I think¬† I have to¬† create my own guide…..

This is me in Stockholm great trip ūüôā

Effettuando una ricerca con le seguenti key words travel with rheumatic  diseases tanti articoli sono apparsi su google, tra questi  FIT FOR TRAVEL

Ero così felice che ho pensato  finalmente qualcuno ha avuto la possibilità di scrivere una serie di suggerimenti di guida per le persone con RMD

Ma non era proprio così in questa pagina sotto la voce RMD  solo questo :

Chiedete al vostro medico se il clima da aspettarsi nella vostra destinazione potrebbe causare una nuova insorgenza della malattia . Uno dei farmaci utilizzati per i reumatismi ( poliartrite cronica principalmente ) è Clorochina . Un dosaggio adeguato del farmaco familiare potrebbe essere necessario fornire una protezione efficace contro la malaria . Quando si viaggia verso zone di malaria, in cui la situazione di resistenza dei parassiti e la pressione di infezione indicano una profilassi antimalarica con Meflochina , la Meflochina non deve essere combinato con il farmaco clorochina . La combinazione di clorochina e proguanil è altamente efficace e ben tollerato .
non male¬† ma non era quello che¬† cercavo… giorno dopo¬† giorno penso di dover¬† creare la mia guida …..

Questa sono io a Stoccolma grande viaggio ūüôā


Travelling of patients with rheumatic diseases: Choice of destination and handling of medication

Patients with inflammatory rheumatic diseases frequently face the question which travel destination would be suitable for them and how to handle their medication while traveling. In general, suitable climates include the climate of high mountains and low mountain ranges as well as the mediterranean coast. Regarding medication, attention has to be paid to maintaining the cooling chain for biologic drugs and to flight and customs regulations.

In the  next fwe days i will come up again with this subeject if you have some tips please  write me.