I wanted to wish you a healthy 2021, hoping that people like us can have a vaccine without any side effect and that everyone can come back to our normal life, and above all I hope I can hug the people I love.
Before leaving this year I just run a little experiment and I want to share with you.
Is only one page e-book of a kids story, if you have Amazon Kindle Unlimited you can have it for free. Please leave me a review even is not good is always appreciated. The short story has been written by me and translated by my husband is available in all Amazon market place. Here the links to take a look at it.
Italian version available here: https://amzn.to/3rG9zX2
English version available here: https://amzn.to/3aWSCBy
What do you see, beside my picture?
Can you see I have AS? Or Fibromialgya? Can you see or notice one of my eye is swollen?
Please let me know because that what this picture is for, to show you that you can appear normal even you have a disease.
Picture Credit To Nuria Arezzi if you want to contact her write me or check her fb profile!
Live the best you can!
All my friends and followers in Facebook have already seen this pic! Is not about my pic of course is about us trying to exercise and be more flexible as we could.
I live in south Italy and I’m lucky to have a lot of sunny days so I can expose myself almost daily to the sun to have my dose of Vitamine D and you ? Do you take some time for you to enjoy the sun even during the winter ? Can you find 30 min in your day to catch the sun ? I try even in my small balcony and it works!
I’m sure I’m lucky to live few minutes driving from the sea side, but if you live far do you exercise ? I do in the water until I can usually from april to end of october, some season in november, and after that I exercise after work. I’m not going anymore to the gym to tell you the truth, for many reasons, but my lovely husband helps me in a training and he trains too.
And you ? Are you able to do some fitnessr? You do not have to do much to stay healthy and believe me if you do it with your husband or wife with a friend or someone from your family is a nice way to do it. Try it or give me your feedback.
Talk to you soon!
Have you ever experienced trouble during your speaking?
I do speak 3 languages and I do speak a lot, but sometimes I feel I can’t talk I can’t speak, like my brain is working and my tongue is not reacting in the correct way.
I was reading online that can happen, and is not a brain condition, my sensation is like my jaw can’t move and I can’t speak. And you maybe you would like to share with me your experience maybe I’m not the only person with AS having this!
I questioned myself, can be stress, because this do not happen everyday, but quite often when I’m nervous or concerning about something is going on in my life.
My solution is, apply yoga breathing and trying to relax, and you ? What do you do ? Other of my concerning is can this be also caused from using some medication? Should I change something in my diet? Should I change my routine? What should I do to feel better?
The sensation I have is feeling trapped !
Let me hear from you and your experience!
Talk to you soon …..
as I promised here I’m, to tell you about my summer and above all to know about yours.
My summer started just after they let us free after the lockdown, I moved to my grandma beach house and I’m still here and I’m working from here.
No bad at all, have the opportunity to jump into the water everyday after 6 pm. During my real vacation I went to Abruzzo region and I enjoyed a lot walking and exploring new historical towns.
Because remember exercise is good for people with our diseas. So my summer was very simple, working from home, walking swimming and enjoying my family!
What about yours?
Comment here 🙂
About 2 months ago, a person that I like and respect a lot contacted me, he wanted me to give a speech to a public of about 300 people. But he was smart he didn’t tell me that my audience was so big, and he knew I wasn’t talking anymore so often in public.
I accepted his invitation even it was hard time for my health, the comorbidities for my AS are bothering me a lot in this period, but I wasn’t afraid, and I faced 300 people in a conference room I went through a guided speech interview and I talk about me and my disease. It was the first time in front of my husband, that was there.
Some tears came up when I remembered the hard time with the pain, and the fear of do not walking and be not any more auto sufficient. I talked to that public and the public responded good people came over to talk to me asking me question, I went straight to their feeling just being me and tell them about my story.
This is something I wanted to share, and I want all of you that land into my page to do not be afraid and fight the diseases. Fight, we have treatments, but above all we are lucky because we can still do many things.
Hello everyone, has been a while since my last article, I know but my life since I’ve got married is so full that I spend less time by the computer.
Today I’m back to write you about my experience trying to approach tango classes with my husband.
I want to touch to 2 point in my article that people with rheumatic disease can know very well.
- When you have a rheumatic disease usually people loose their partner and friends, me with a rheumatic disease I got married so let say I won on this! 🙂 Regarding friends, I understood which one is worth to take with me!
- The second point is very close to point one is about love, believe me if it is hard for a couple without health problem think about me how hard can be, but you know what you have to believe it and trying to grow day by day with your partner. Now you are thinking so what about Tango…….
Here it start my today blogging, one of these bad period that everyone have, my husband look into my eyes and said what about thinking about having tango class together, my first reaction was oh my God, my husband the one who had so much hard time to dance during the weeding is asking me to go to tango class? It was a MIRACLE. Than few seconds ready I start to activate my brain and I thought what about if I can’t if my body will be sore or I’m so rigid because AS that I will look silly… But I already I said yes to him the only thing was trying and see if those classes can fit for us.
At the end of everything I can say the class are amazing, people are amazing, and after 6 months we are keeping going to class together, we love to rehearsal at home we love the feeling that we have dancing together. Tango class is our moment, even I’m not good as my husband has reveled (he is one of the best in out beginner class) he is there with me to hold me when I can’t make on my heals.
So tango, in my opinion can save your relationship with your partner, can teach you a right posture and above all makes you feel good and connected with your partner.
Vacation for everyone is relax, for us with our diseases must be only relax…. is that true?
The truth is that a vacation has to be spent at the best, no matter if we go to the beach, to the mountain, to visit nice cities around the world.
What do we have to remember:
- Don’t forget your medication and have a certificate that state you have to take them. There are some airlines specially low cost that can give you problems in case you carry biologics treatments. Remember your medications and all your papers must travel with your carry on.
- If you book a long trip make sure you can reach your final destination maybe in more than one step ( i.e. I had to go from south Italy to Guam I decided to have a stop over in South Korea so I rested and I visited Seul and follow my trip) Instead to travel more than 26 hours I traveled half.
- If you travel by plane or by train choose an aisle it will be easier for you to stand up and move. You know you cannot be in the same position for long.
- Ask for assistance at the airport at the train station, where ever you are and you go is your right they will make your trip easier and help who is traveling with you do not get stressed during the vacation.
- Make plan before to enjoy every single day of your free time. ( make sure all the opening and closing time, what to see, where to eat).
Ok then so now you only need your ticket and you are ready to go… Enjoy your summer!
my post today is regarding us with rheumatic diseases but even regarding all the people with rheumatic diseases, they can be women or men doesn’t matter.
I read in a lot of forum that couple broke up after one of the partner get sick and need help or just need to be understood. This is so bad and of course upset us so much….
But at the same time we can realize that the person we have chosen is not the right one, rather you got married in a church or not the sentence “for better or for worse in health and disease” is completely forgot from who in the couple is not sick unless the love is REAL and DEEP.
So what to do ?
be focus on us try to be better as we can and let him or her go we do not deserve more pain!
Another advise ? I’ve got married this year at 42 years old, and my love took me and my pain in one shot, he knows it can worst but he knows i’m a warrior.
Be a warrior be focus on you and if your partner is not good to be next to you, just CHANGE IT !
Waiting for your comments…
Wish you a flare free week.