What do you see?

What do you see, beside my picture?

Can you see I have AS? Or Fibromialgya? Can you see or notice one of my eye is swollen?

Please let me know because that what this picture is for, to show you that you can appear normal even you have a disease.

Picture Credit To Nuria Arezzi if you want to contact her write me or check her fb profile!

https://www.facebook.com/nuria.arezzi

Live the best you can!

Vitamine Sea ooppsss D & Exercise

All my friends and followers in Facebook have already seen this pic! Is not about my pic of course is about us trying to exercise and be more flexible as we could.

I live in south Italy and I’m lucky to have a lot of sunny days so I can expose myself almost daily to the sun to have my dose of Vitamine D and you ? Do you take some time for you to enjoy the sun even during the winter ? Can you find 30 min in your day to catch the sun ? I try even in my small balcony and it works!

I’m sure I’m lucky to live few minutes driving from the sea side, but if you live far do you exercise ? I do in the water until I can usually from april to end of october, some season in november, and after that I exercise after work. I’m not going anymore to the gym to tell you the truth, for many reasons, but my lovely husband helps me in a training and he trains too.

And you ? Are you able to do some fitnessr? You do not have to do much to stay healthy and believe me if you do it with your husband or wife with a friend or someone from your family is a nice way to do it. Try it or give me your feedback.

Talk to you soon!

 

 

 

Do you have trouble speaking ?

Have you ever experienced trouble during your speaking?

I do speak 3 languages and I do speak a lot, but sometimes I feel I can’t talk I can’t speak, like my brain is working and my tongue is not reacting in the correct way.

I was reading online that can happen, and is not a brain condition, my sensation is like my jaw can’t move and I can’t speak. And you maybe you would like to share with me your experience maybe I’m not the only person with AS having this!

I questioned myself, can be stress, because this do not happen everyday, but quite often when I’m nervous or concerning about something is going on in my life.

My solution is, apply yoga breathing and trying to relax, and you ? What do you do ? Other of my concerning is can this be also caused from using some medication? Should I change something in my diet? Should I change my routine? What should I do to feel better?

The sensation I have is feeling trapped !

Let me hear from you and your experience!

Talk to you soon …..

Did you enjoy your summer?

 

 

Hello everyone,

as I promised here I’m, to tell you about my summer and above all to know about yours.

My summer started just after they let us free after the lockdown, I moved to my grandma beach house and I’m still here and I’m working from here.

No bad at all, have the opportunity to jump into the water everyday after 6 pm. During my real vacation I went to Abruzzo region and I enjoyed a lot walking and exploring new historical towns.

Because remember exercise is good for people with our diseas. So my summer was very simple, working from home, walking swimming and enjoying my family!

What about yours?

Comment here ūüôā

Tango and Ankylosing Spondylitis

 

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Hello everyone, has been a while since my last article, I know but my life since I’ve got married is so full that I spend less time by the computer.

Today I’m back to write you about my experience trying to approach tango classes with my husband.

I want to touch to 2 point in my article that people with rheumatic disease can know very well.

  1. When you have a rheumatic disease usually people loose their partner and friends, me with a rheumatic disease I got married so let say I won on this! ūüôā¬† Regarding friends, I understood which one is worth to take with me!
  2. The second point is very close to point one is about love, believe me if it is hard for a couple without health problem think about me how hard can be, but you know what you have to believe it and trying to grow day by day with your partner. Now you are thinking so what about Tango…….

Here it start my today blogging, one of these bad period that everyone have, my husband look into my eyes and said what about thinking about having tango class together, my first reaction was oh my God, my husband the one who had so much hard time to dance during the weeding is asking me to go to tango class? It was a MIRACLE. Than few seconds ready I start to activate my brain and I thought what about if I can’t if my body will be sore or I’m so rigid because AS that I will look silly… But I already I said yes to him the only thing was trying and see if those classes can fit for us.

At the end of everything I can say the class are amazing, people are amazing, and after 6 months we are keeping going to class together, we love to rehearsal at home we love the feeling that we have dancing together. Tango class is our moment, even I’m not good as my husband has reveled (he is one of the best in out beginner class)¬† he is there with me to hold me when I can’t make on my heals.

So tango, in my opinion can save your relationship with your partner, can teach you a right posture and above all makes you feel good and connected with your partner.

 

5 Things People With Rheumatic Diseases Want You to Know

 

Pilates

 

 

  1. Just because I look fine and I smile doesn’t mean I’m: I know I look ¬†wonderful the expression of health… I call it cortisone or biologic!
  2. Mine is not just a pain and ¬†rheumatic diseases are not only related to old people : I know when I say my back hurts or my legs or any part of my body hurts you say c’mon you are not old
  3. A nap some days can help me do not make fun of it:¬†there are some ¬†days that i really need a nap I need to rest my entire body, and you thing I’m spoiled!
  4. Be on a diet or taking more pill will not cure me: only few can understand that i be on a special diet such gluten free, vegan or taking all the pills for arthritis pain will cure!
  5. My pains affect not only me but everyone in my family: my pains affect all the people that live with me, because ¬†they have ¬†to¬†deal with me in good or bad! That’s why mom and dad can understand you but make sure you choose the right husband like I ¬†did ūüôā

 

Partner or not…. “Diseases the problem”

Marriage-Infographic-2

Hello  everyone,

my post ¬†today is regarding us with rheumatic diseases but even regarding all the people with ¬†rheumatic diseases, they can be women or men doesn’t matter.

I read ¬†in a lot of ¬†forum that couple ¬†broke up after one of the partner get sick and need help or just need ¬†to be understood. This is ¬†so bad and of course upset us so much….

But at the same time ¬†we can realize that the person we have ¬†chosen is not the right one, rather you got married ¬†in a church or not ¬†the sentence “for better or for worse in health and disease” ¬†is completely forgot from who in the couple is not sick unless the love is ¬†REAL and ¬†DEEP.

So what to  do ?

be focus on us  try to be better as we can and let him or her go we do not  deserve more pain!

Another advise ? I’ve got married this year at 42 ¬†years old, and my love ¬†took ¬†me and my pain in one ¬†shot, he knows it can ¬†worst but he knows i’m a warrior.

Be a  warrior be focus on you and  if your partner is not  good to be next to you, just CHANGE IT !

Waiting for your comments…

Wish you a flare free week.

 

Birth Control for people with rheumatic diseases

 

MiracleBirthControl

Someone  in private messages asked my opinion on birth control and  rheumatic  diseases.

As a patient as a woman this  question make me think a lot.

If I have to follow what is published online  i get lost, the only thing i can say and this is just my opinion is trust the Rheumatologist  and  the the Gyno, that sometimes can work together  and advise the patient for the best.

Probably these 2 Docs can advise  on the best birth control for us without give us others comorbidities.

If you want to comment or give me your personal opinion please  do it!

I will be happy to publish your comments.

I wish you a flare free week.

 

A new challenge to live together. Rheumatic diseases explained to children

Dear friends,

I know for the past ¬†2 years I wasn’t present that much, is my fault my busy life with my AS.

Today I’m so happy to share with you this italian project with subtitles in english.

Enjoy and spread .

Thank you

Adriana

EFCCA : Survey on Biologics & Biosimilars

 EFCCA : Survey on Biologics & Biosimilars

If you  think that is interesting, please share and take few minutes for the survey.

If you want to express your opinion in English, Spanish, Italian, French, German and Greek just click and partecipate at the survey.

Thanks

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