5 Tips to travel this summer for people with rheumatic diseases

woman meditating on tropical beach in the caribbean

Vacation for  everyone is relax, for us with our diseases must be only  relax…. is that true?

The truth is  that a vacation has to be spent  at the best, no matter if  we go  to the beach, to the mountain, to visit nice  cities  around the world.

What  do we have to remember:

  • Don’t forget  your medication and  have a certificate that state you have to take them. There are some airlines specially low cost that can give you problems in case you carry biologics treatments. Remember  your medications and all your papers must  travel  with your carry on.
  • If you  book a long trip make  sure you can reach your final destination maybe in more than one step ( i.e. I had to go  from south Italy to Guam I decided to have  a stop over in South Korea so I rested and I visited Seul and follow  my trip) Instead  to travel more than 26 hours  I traveled half.
  • If you travel by plane or by train choose an aisle it will be  easier  for you to stand up and move. You know  you cannot be in the same position for long.
  • Ask  for  assistance at the airport at the train station, where ever you are and you go  is your right they will make your  trip easier and help who is traveling with you do not  get stressed during  the vacation.
  • Make plan before  to enjoy every single day of your free time. ( make sure all the opening and closing time, what to see, where to eat).

Ok then so now  you only need  your ticket and you are ready  to go… Enjoy your summer!

Partner or not…. “Diseases the problem”

Marriage-Infographic-2

Hello  everyone,

my post  today is regarding us with rheumatic diseases but even regarding all the people with  rheumatic diseases, they can be women or men doesn’t matter.

I read  in a lot of  forum that couple  broke up after one of the partner get sick and need help or just need  to be understood. This is  so bad and of course upset us so much….

But at the same time  we can realize that the person we have  chosen is not the right one, rather you got married  in a church or not  the sentence “for better or for worse in health and disease”  is completely forgot from who in the couple is not sick unless the love is  REAL and  DEEP.

So what to  do ?

be focus on us  try to be better as we can and let him or her go we do not  deserve more pain!

Another advise ? I’ve got married this year at 42  years old, and my love  took  me and my pain in one  shot, he knows it can  worst but he knows i’m a warrior.

Be a  warrior be focus on you and  if your partner is not  good to be next to you, just CHANGE IT !

Waiting for your comments…

Wish you a flare free week.

 

Ways to Ease Ankylosing Spondylitis Pain Chapter 2

If you liked my last post … let’s follow :

Keep Moving

moving

Your number one defense against spondylitis pain and stiffness is to get moving. Rest and couch-potato inactivity allow your joints to start fusing together, which is what you need to avoid with ankylosing spondylitis. Ruth Kadanoff, MD, professor of rheumatology at the Loyola University Stritch School of Medicine in Chicago, says, “The type of movement is not as important as the frequency. You need to be doing some type of exercise twice a day. The best exercise is a low-impact type of exercise like walking.” Make simple exercise a daily habit, just like brushing your teeth, and you’ll be well on your way to relieving lower back pain.

Get Physical

physical

The next step after correcting your posture is to follow a more comprehensive physical therapy program for ankylosing spondylitis relief. “We now know that spondylitis also includes an increased risk for osteoporosis and heart disease. That means you can really benefit from a complete program that includes aerobic exercise, range of motion exercise, and strength training,” says Papchristos. Besides targeting lower back pain, bone health, and heart health, a physical therapy program may include deep breathing exercises to prevent your rib cage from stiffening.

 

Take to Water

Gym

Exercises that are good for lower back pain and spondylitis on land are usually even better in a pool. Swimming is a great low-impact aerobic exercise for ankylosing spondylitis. “Studies consistently show that water exercises are the best types of exercise for spondylitis pain and stiffness,” says Papachristos. A survey published in the Scandinavian Journal of Rheumatology illustrates this: Researchers found that the most common exercise for people with spondylitis is walking, but the most effective for relieving pain and the most enjoyable is exercising in a pool. Many gyms offer water exercise classes, or you can ask a doctor or physical therapist for suggestions of exercises to do in a pool.

 

Learn a Mind-Body Exercise

tai

If you’re mostly familiar with cardiovascular and strength training, exercises like tai chi and qi gong may seem foreign at first, but these wellness disciplines could help you find a better balance between mind and body. Mind-body exercises can help you learn to listen to your body, reduce the stress of spondylitis pain, and avoid injury. According to the National Center for Complementary and Alternative Medicine, these exercises have been shown to improve bone health, balance, prevent falls, and make your heart and lungs stronger — all good things for anyone with ankylosing spondylitis pain and stiffness.

Thanks to : Chris Iliades, MD

Ways to Ease Ankylosing Spondylitis Pain Chapter 1

 

If you like me are living with ankylosing spondylitis, you know the back pain and fatigue that are hallmarks of the condition can be unpredictable. But fortunately, there are many approaches — besides simply relying on medications — that you can take to ease spondylitis pain and stiffness and move more freely. Most of these ideas are free or inexpensive, and even enjoyable to boot. You’ll find that the emotional boost you get from taking these steps can be as great as the physical improvement.

Make Mornings More Manageable

morning

If you’re like most people with ankylosing spondylitis, your lower back pain and stiffness is worse in the morning. “When joints are stationary for a time, the joint fluid actually thickens a bit, like ketchup,” says Sturdy McKee, MPT, physical therapist and CEO of San Francisco Sport and Spine Physical Therapy. “You can shake or stir your joints through repeated movements — any repeated movements.” Talk to your doctor or physical therapist to create a morning routine of gentle motions that can lessen spondylitis pain and get your joints moving.

Hit the Showers

Shower

When the fluids in your joints get thick and stiff, spondylitis pain gets worse. A great way to get those fluids moving is to warm them up with a warm bath or shower, which loosens up your muscles and makes it easier to exercise. In fact, you might find that doing some exercise in the shower can help get you going in the morning. You may also find that doing your posture training for ankylosing spondylitis after a warm bath or shower, when your body is warmed up, is easier for you.

Correct Poor Posture

posture

Poor posture ramps up spondylitis pain and stiffness. Minimize lower back pain with what medical experts call “posture training:” Think tall by keeping your head balanced and your back straight at all times, and practice standing with your back against a wall and prone lying, which is lying face down on a firm surface. A physical therapist can show you the ropes. “Posture training should be done for about 30 minutes every day, but you can break this time up into 10- or 15-minute sessions,” says Angelo Papachristos, a physiotherapist at St. Michael’s Hospital in Toronto, Ontario, Canada.

Special thanks  to : Chris Iliades, MD

Food/ Diet & Ankylosing spondylitis

index

 

Whether a person is affected by a chronic illness or not, there are some straightforward guidelines that if followed, would lead to improved health and well-being for almost everyone. Both calcium and alcohol affect the strength of the bones, and it is a well known fact that people with spondylitis are already at higher risk for osteoporosis, a dangerous thinning of the bones that can lead to fractures. Following a diet with adequate amounts of calcium and vitamin D will help reduce the risk of osteoporosis. Alcoholic beverages can also weaken bones. Consuming more than two alcoholic drinks per day increases a person’s chances of developing weakened bones. In addition, alcohol mixed with certain medications can cause serious side-effects to the gastrointestinal tract and to major organs such as the liver and the kidneys. It is important to find out from your doctor whether any of the medications that you take affect how your body uses what you eat. For instance, some medications cause a person to retain sodium, while others cause potassium loss. Methotrexate can lower folic acid levels causing a variety of adverse symptoms which can be offset by taking additional supplements. Whatever you decide, expert agree that there are basic guidelines to good nutrition, which are: Eat a variety of foods that make you feel good – avoid those that do not. Eat plenty of vegetables, fruits, and whole-grain products. Use fat (especially saturated fat found in animal products), cholesterol, sugar, and salt in moderation. Drink 8-10 glasses of water a day. Most people receive daily requirements of vitamins and minerals by eating a well-balanced diet, but others need to take vitamin supplements. Avoid alcohol or foods that can interact with your medication. Talk with your doctor and/or pharmacist about potential interactions.

 

Therapeutic Yoga : Yoga Poses for Rheumatoid Arthritis

 

Hello everyone,

here I’m back with my tips… Have you ever try to do yoga ? I love it, here some new tips  to share with you.

Try it and give me feed back…

I promise one day I will record my own video just to exercise together.

Ciao a tutti,

Eccomi qui con dei  nuovi  consigli…. Avete mai provato a fare Yoga?  A me piace tanto, per questo voglio condividere con voi questi consigli e attendo i vostri feedback.

Vi prometto  prima o poi giro anch’io un video così da praticare insieme Yoga.

Rheumatic Heart Disease in African Children, OPEN HEART

I really enjoy to watch, but above all to know that even in Africa Children can  get well.

Ho apprezzato molto il video e volevo condividerlo con voi.

Enjoy the vision …. Buona  visione