5 Things People With Rheumatic Diseases Want You to Know

 

Pilates

 

 

  1. Just because I look fine and I smile doesn’t mean I’m: I know I look  wonderful the expression of health… I call it cortisone or biologic!
  2. Mine is not just a pain and  rheumatic diseases are not only related to old people : I know when I say my back hurts or my legs or any part of my body hurts you say c’mon you are not old
  3. A nap some days can help me do not make fun of it: there are some  days that i really need a nap I need to rest my entire body, and you thing I’m spoiled!
  4. Be on a diet or taking more pill will not cure me: only few can understand that i be on a special diet such gluten free, vegan or taking all the pills for arthritis pain will cure!
  5. My pains affect not only me but everyone in my family: my pains affect all the people that live with me, because  they have  to deal with me in good or bad! That’s why mom and dad can understand you but make sure you choose the right husband like I  did 🙂

 

5 Tips to travel this summer for people with rheumatic diseases

woman meditating on tropical beach in the caribbean

Vacation for  everyone is relax, for us with our diseases must be only  relax…. is that true?

The truth is  that a vacation has to be spent  at the best, no matter if  we go  to the beach, to the mountain, to visit nice  cities  around the world.

What  do we have to remember:

  • Don’t forget  your medication and  have a certificate that state you have to take them. There are some airlines specially low cost that can give you problems in case you carry biologics treatments. Remember  your medications and all your papers must  travel  with your carry on.
  • If you  book a long trip make  sure you can reach your final destination maybe in more than one step ( i.e. I had to go  from south Italy to Guam I decided to have  a stop over in South Korea so I rested and I visited Seul and follow  my trip) Instead  to travel more than 26 hours  I traveled half.
  • If you travel by plane or by train choose an aisle it will be  easier  for you to stand up and move. You know  you cannot be in the same position for long.
  • Ask  for  assistance at the airport at the train station, where ever you are and you go  is your right they will make your  trip easier and help who is traveling with you do not  get stressed during  the vacation.
  • Make plan before  to enjoy every single day of your free time. ( make sure all the opening and closing time, what to see, where to eat).

Ok then so now  you only need  your ticket and you are ready  to go… Enjoy your summer!

Partner or not…. “Diseases the problem”

Marriage-Infographic-2

Hello  everyone,

my post  today is regarding us with rheumatic diseases but even regarding all the people with  rheumatic diseases, they can be women or men doesn’t matter.

I read  in a lot of  forum that couple  broke up after one of the partner get sick and need help or just need  to be understood. This is  so bad and of course upset us so much….

But at the same time  we can realize that the person we have  chosen is not the right one, rather you got married  in a church or not  the sentence “for better or for worse in health and disease”  is completely forgot from who in the couple is not sick unless the love is  REAL and  DEEP.

So what to  do ?

be focus on us  try to be better as we can and let him or her go we do not  deserve more pain!

Another advise ? I’ve got married this year at 42  years old, and my love  took  me and my pain in one  shot, he knows it can  worst but he knows i’m a warrior.

Be a  warrior be focus on you and  if your partner is not  good to be next to you, just CHANGE IT !

Waiting for your comments…

Wish you a flare free week.

 

Birth Control for people with rheumatic diseases

 

MiracleBirthControl

Someone  in private messages asked my opinion on birth control and  rheumatic  diseases.

As a patient as a woman this  question make me think a lot.

If I have to follow what is published online  i get lost, the only thing i can say and this is just my opinion is trust the Rheumatologist  and  the the Gyno, that sometimes can work together  and advise the patient for the best.

Probably these 2 Docs can advise  on the best birth control for us without give us others comorbidities.

If you want to comment or give me your personal opinion please  do it!

I will be happy to publish your comments.

I wish you a flare free week.

 

EFCCA : Survey on Biologics & Biosimilars

 EFCCA : Survey on Biologics & Biosimilars

If you  think that is interesting, please share and take few minutes for the survey.

If you want to express your opinion in English, Spanish, Italian, French, German and Greek just click and partecipate at the survey.

Thanks

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Therapeutic Yoga : Yoga Poses for Rheumatoid Arthritis

 

Hello everyone,

here I’m back with my tips… Have you ever try to do yoga ? I love it, here some new tips  to share with you.

Try it and give me feed back…

I promise one day I will record my own video just to exercise together.

Ciao a tutti,

Eccomi qui con dei  nuovi  consigli…. Avete mai provato a fare Yoga?  A me piace tanto, per questo voglio condividere con voi questi consigli e attendo i vostri feedback.

Vi prometto  prima o poi giro anch’io un video così da praticare insieme Yoga.

Yoga for your back – Nice tips to share with all of you

Dear  Friend I just discovered this and I want to share with you.

People like us that have problems with our back should practice slowly movments like that to help our back.

Enjoy the lesson….

Cari amici è un piacere condividere un video appena scoperto.

Le persone che come noi hanno problemi alla schiena dovrebbero  praticare una ginnastica dolce che aiuti con la schiena.

Buona Lezione……