5 Things People With Rheumatic Diseases Want You to Know

 

Pilates

 

 

  1. Just because I look fine and I smile doesn’t mean I’m: I know I look  wonderful the expression of health… I call it cortisone or biologic!
  2. Mine is not just a pain and  rheumatic diseases are not only related to old people : I know when I say my back hurts or my legs or any part of my body hurts you say c’mon you are not old
  3. A nap some days can help me do not make fun of it: there are some  days that i really need a nap I need to rest my entire body, and you thing I’m spoiled!
  4. Be on a diet or taking more pill will not cure me: only few can understand that i be on a special diet such gluten free, vegan or taking all the pills for arthritis pain will cure!
  5. My pains affect not only me but everyone in my family: my pains affect all the people that live with me, because  they have  to deal with me in good or bad! That’s why mom and dad can understand you but make sure you choose the right husband like I  did 🙂

 

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Partner or not…. “Diseases the problem”

Marriage-Infographic-2

Hello  everyone,

my post  today is regarding us with rheumatic diseases but even regarding all the people with  rheumatic diseases, they can be women or men doesn’t matter.

I read  in a lot of  forum that couple  broke up after one of the partner get sick and need help or just need  to be understood. This is  so bad and of course upset us so much….

But at the same time  we can realize that the person we have  chosen is not the right one, rather you got married  in a church or not  the sentence “for better or for worse in health and disease”  is completely forgot from who in the couple is not sick unless the love is  REAL and  DEEP.

So what to  do ?

be focus on us  try to be better as we can and let him or her go we do not  deserve more pain!

Another advise ? I’ve got married this year at 42  years old, and my love  took  me and my pain in one  shot, he knows it can  worst but he knows i’m a warrior.

Be a  warrior be focus on you and  if your partner is not  good to be next to you, just CHANGE IT !

Waiting for your comments…

Wish you a flare free week.

 

Diagnosing Ankylosing Spondylitis in Women

Ankylosing spondylitis has often been considered more of a man’s disease, yet the reality is that it affects some women, too.

The genetic marker for ankylosing spondylitis, HLA-B27, is found equally in men and women. However, ankylosing spondylitis is two or three times more common in men than women, said Rodney Tehrani, MD, a rheumatologist at Loyola University Medical Center in Maywood, Ill.

Ankylosing Spondylitis Diagnosis in Women: Why the Difference?

Many experts believe several factors may explain why it’s harder to reach an ankylosing spondylitis diagnosis in women. Some women may have milder symptoms, so ankylosing spondylitis symptoms may not be as obvious. Progression also may be slower, and symptoms can seem like other ailments, such as rheumatoid arthritis or fibromyalgia. The area of discomfort also can interfere with making the correct diagnosis. Along with back pain, women also might experience soreness in the neck and peripheral joints, in contrast to men who mainly tend to note back pain.

When to Suspect Ankylosing Spondylitis in Women

Getting the correct diagnosis is critical to getting started on the right treatment. “Clinicians should suspect the disease in women who complain of back pain, particularly when associated with any or all of the following: morning stiffness or stiff back after resting, psoriasis, inflammation of the eyes, frequent canker sores, irregular nails, swelling of the joints, painful joints, particularly shoulders and hips, and frequent abdominal pain and diarrhea,” said Ali D. Askari, MD, chief of the rheumatology division at University Hospitals Case Medical Center and a professor at the Case Western Reserve University School of Medicine in Cleveland.

Symptoms also should be carefully studied. For example, back pain from ankylosing spondylitis typically lessens with movement and exercise and gets worse with rest — a feature that sets it apart from some other ailments, like degenerative arthritis.

The Progression of Ankylosing Spondylitis in Women

Anyone with an ankylosing spondylitis diagnosis is naturally concerned about what comes next, but “there is no set course for this disease,” Dr. Tehrani explained. “It is variable in every individual, whether male or female.”

Most often, people with ankylosing spondylitis experience flares — painful episodes — mixed with times of remission when symptoms lessen. As the disease progresses, some of the vertebrae in the spine may fuse together, which makes the back more rigid and at greater risk for fracture.

How Ankylosing Spondylitis in Women Is Treated

Treatment options are similar for women and men. Medications for ankylosing spondylitis symptoms include non-steroidal anti-inflammatory drugs (NSAIDs) as the first line of attack to help address stiffness, neck pain, and back pain in women. When something stronger becomes necessary, most doctors turn to disease modifying anti-rheumatic drugs like corticosteroids and sulfasalazine. Biologics or TNF blockers are the latest additions to the treatment option arsenal.

Exercise also is important to retaining flexibility and keeping pain at bay. For example, Pilates has been shown to improve physical capacity and endurance in ankylosing spondylitis. A physical therapist can offer other suggestions.

Maintaining good posture, using heat to reduce soreness and using cold to lessen swelling also can help. Those with very serious cases might need to consider surgery.

Regardless of your symptom level, it’s important for women — and for men, too — to see a rheumatologist at least once a year to make sure you aren’t developing any other issues

Source Everyday Health

9 -Tips for Traveling With Arthritis

Whether you’re traveling for business or pleasure, you know arthritis is one thing you can’t get away from. But it doesn’t have to derail your travel plans.

Try these tips for taking care of your Arthritis and avoiding joint pain while you’re on the road.

Traveling With Arthritis: Before You Go

1. Do your homework. Find out as much as you can about your destination and plan all the details you can ahead, including what places you’ll go, how you’ll get there, and what your travel companions can do when you need a rest.

2. Time it right. Choose a time when you are most likely to be feeling your best. If you are prone to flares during the heat of the summer or the hustle and bustle of the holidays, for example, try to avoid traveling during those times.

3. Don’t rush. Although vacations can be fun and restful, they can also be stressful. Try to plan an extra day at the start of your vacation to prepare and another at the end to rest and recuperate before going back to work or regular activities.

4. Ask about immunizations. If you will be traveling overseas, ask your doctor about any immunizations you may need. Keep in mind that some immunizations are not advised if you are taking medications that suppress your immune system.

What to Pack

5. Select the right suitcase. Purchase a suitcase or carry-on with wheels, and push instead of pulling it. Use both hands. Doing so will conserve energy and avoid strain on your hands and shoulders.

6. Pack light. A lighter suitcase is easier to push — and lift, if necessary. If you find that you must lift your suitcase — into your car trunk or the overhead bin on a plane, for example — find someone who can help.

7. Don’t forget your health info. Write out a brief medical history and list of medications you take. Include contact information for your primary care doctor and rheumatologist, as well as your health insurance information.

8. Mind your medications. Pack more medicine than you think you will need and divide your medications among your different bags. If one bag is lost, you should still have enough medicine to get by. Leave a copy of your prescriptions at home with a friend or family member. If you lose your medications or are gone longer than expected, have them fax you your prescription.

On Your Way

9. Don’t just sit there. Sitting for hours in a car, plane, bus, or train can lead to stiff joints. When driving, stop once an hour to stretch and walk. When flying or riding a bus, try to get an aisle seat so you can stretch and get up and walk.