5 Things People With Rheumatic Diseases Want You to Know

 

Pilates

 

 

  1. Just because I look fine and I smile doesn’t mean I’m: I know I look  wonderful the expression of health… I call it cortisone or biologic!
  2. Mine is not just a pain and  rheumatic diseases are not only related to old people : I know when I say my back hurts or my legs or any part of my body hurts you say c’mon you are not old
  3. A nap some days can help me do not make fun of it: there are some  days that i really need a nap I need to rest my entire body, and you thing I’m spoiled!
  4. Be on a diet or taking more pill will not cure me: only few can understand that i be on a special diet such gluten free, vegan or taking all the pills for arthritis pain will cure!
  5. My pains affect not only me but everyone in my family: my pains affect all the people that live with me, because  they have  to deal with me in good or bad! That’s why mom and dad can understand you but make sure you choose the right husband like I  did 🙂

 

Partner or not…. “Diseases the problem”

Marriage-Infographic-2

Hello  everyone,

my post  today is regarding us with rheumatic diseases but even regarding all the people with  rheumatic diseases, they can be women or men doesn’t matter.

I read  in a lot of  forum that couple  broke up after one of the partner get sick and need help or just need  to be understood. This is  so bad and of course upset us so much….

But at the same time  we can realize that the person we have  chosen is not the right one, rather you got married  in a church or not  the sentence “for better or for worse in health and disease”  is completely forgot from who in the couple is not sick unless the love is  REAL and  DEEP.

So what to  do ?

be focus on us  try to be better as we can and let him or her go we do not  deserve more pain!

Another advise ? I’ve got married this year at 42  years old, and my love  took  me and my pain in one  shot, he knows it can  worst but he knows i’m a warrior.

Be a  warrior be focus on you and  if your partner is not  good to be next to you, just CHANGE IT !

Waiting for your comments…

Wish you a flare free week.

 

Birth Control for people with rheumatic diseases

 

MiracleBirthControl

Someone  in private messages asked my opinion on birth control and  rheumatic  diseases.

As a patient as a woman this  question make me think a lot.

If I have to follow what is published online  i get lost, the only thing i can say and this is just my opinion is trust the Rheumatologist  and  the the Gyno, that sometimes can work together  and advise the patient for the best.

Probably these 2 Docs can advise  on the best birth control for us without give us others comorbidities.

If you want to comment or give me your personal opinion please  do it!

I will be happy to publish your comments.

I wish you a flare free week.

 

Therapeutic Yoga : Yoga Poses for Rheumatoid Arthritis

 

Hello everyone,

here I’m back with my tips… Have you ever try to do yoga ? I love it, here some new tips  to share with you.

Try it and give me feed back…

I promise one day I will record my own video just to exercise together.

Ciao a tutti,

Eccomi qui con dei  nuovi  consigli…. Avete mai provato a fare Yoga?  A me piace tanto, per questo voglio condividere con voi questi consigli e attendo i vostri feedback.

Vi prometto  prima o poi giro anch’io un video così da praticare insieme Yoga.

Belly Dancing Can Reduce Fibromyalgia Pain

IMG_0088

This is me  2010 / Questa sono io 2010

Exercise is an important component of any fibromyalgia treatment plan. According to a Brazilian study recently published in the journal Clinical and Experimental Rheumatology, belly dancing can be a good exercise option for people with fibromyalgia.

Study Design and Result

A total of 80 female fibromyalgia patients between the ages of 18 to 65 took part in the study. Half (40) of the women were randomly assigned to a dance group while the other half remained on a waiting list. Those in the dance group participated in a one-hour class twice a week for 16 weeks.

Participants were evaluated for pain, function, quality of life, depression, anxiety and self image at baseline, 16 weeks and 32 weeks by an assessor who did not know whether or not they had participated in the dance classes.

Patients who took part in the belly dance classes showed significant improvement in pain, sleep pattern, functional capacity and self-image from baseline to 32 weeks. The researchers concluded that belly dancing is “a safe, effective therapeutic strategy for women with fibromyalgia.”

L’esercizio fisico è una componente importante di qualsiasi piano di trattamento della fibromialgia .

Secondo uno studio brasiliano ha recentemente pubblicato sulla rivista Clinical and Experimental Rheumatology , danza del ventre può essere una buona opzione di esercizio per le persone con fibromialgia .

Lo studio e  i risultati

Un totale di 80 pazienti con fibromialgia donne di età compresa tra 18 e 65 tra preso parte allo studio .

La metà ( 40 ) delle donne sono state assegnate in modo casuale a un gruppo di danza , mentre l’altra metà è rimasta in lista di attesa .

Quelle del gruppo di danza hanno partecipato a una lezione di un’ora due volte a settimana per 16 settimane .

Le partecipanti sono staite valutate per il dolore , la funzione, la qualità  di vita , la depressione , l’ansia  ,

per 16 settimane e 32 settimane da un consulente tecnico che non sapeva se o non avessero partecipato alle lezioni di danza .

Le pazienti che hanno preso parte alle lezioni di danza del ventre hanno mostrato un miglioramento significativo del dolore , modello di sonno , la capacità funzionale e l’immagine di sé dal basale a 32 settimane.

I ricercatori hanno concluso che la danza del ventre è ” una strategia terapeutica efficace sicura per le donne con fibromialgia . ”

Source:

Baptista AS, et al. Effectiveness of dance in patients with fibromyalgia: a randomized, single-blind, controlled study. Clinical and Experimental Rheumatology. 2012 Sep 28. [Epub ahead of print]