5 Things People With Rheumatic Diseases Want You to Know

 

Pilates

 

 

  1. Just because I look fine and I smile doesn’t mean I’m: I know I look  wonderful the expression of health… I call it cortisone or biologic!
  2. Mine is not just a pain and  rheumatic diseases are not only related to old people : I know when I say my back hurts or my legs or any part of my body hurts you say c’mon you are not old
  3. A nap some days can help me do not make fun of it: there are some  days that i really need a nap I need to rest my entire body, and you thing I’m spoiled!
  4. Be on a diet or taking more pill will not cure me: only few can understand that i be on a special diet such gluten free, vegan or taking all the pills for arthritis pain will cure!
  5. My pains affect not only me but everyone in my family: my pains affect all the people that live with me, because  they have  to deal with me in good or bad! That’s why mom and dad can understand you but make sure you choose the right husband like I  did 🙂

 

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Partner or not…. “Diseases the problem”

Marriage-Infographic-2

Hello  everyone,

my post  today is regarding us with rheumatic diseases but even regarding all the people with  rheumatic diseases, they can be women or men doesn’t matter.

I read  in a lot of  forum that couple  broke up after one of the partner get sick and need help or just need  to be understood. This is  so bad and of course upset us so much….

But at the same time  we can realize that the person we have  chosen is not the right one, rather you got married  in a church or not  the sentence “for better or for worse in health and disease”  is completely forgot from who in the couple is not sick unless the love is  REAL and  DEEP.

So what to  do ?

be focus on us  try to be better as we can and let him or her go we do not  deserve more pain!

Another advise ? I’ve got married this year at 42  years old, and my love  took  me and my pain in one  shot, he knows it can  worst but he knows i’m a warrior.

Be a  warrior be focus on you and  if your partner is not  good to be next to you, just CHANGE IT !

Waiting for your comments…

Wish you a flare free week.

 

A new challenge to live together. Rheumatic diseases explained to children

Dear friends,

I know for the past  2 years I wasn’t present that much, is my fault my busy life with my AS.

Today I’m so happy to share with you this italian project with subtitles in english.

Enjoy and spread .

Thank you

Adriana

Diagnosing Ankylosing Spondylitis in Women

Ankylosing spondylitis has often been considered more of a man’s disease, yet the reality is that it affects some women, too.

The genetic marker for ankylosing spondylitis, HLA-B27, is found equally in men and women. However, ankylosing spondylitis is two or three times more common in men than women, said Rodney Tehrani, MD, a rheumatologist at Loyola University Medical Center in Maywood, Ill.

Ankylosing Spondylitis Diagnosis in Women: Why the Difference?

Many experts believe several factors may explain why it’s harder to reach an ankylosing spondylitis diagnosis in women. Some women may have milder symptoms, so ankylosing spondylitis symptoms may not be as obvious. Progression also may be slower, and symptoms can seem like other ailments, such as rheumatoid arthritis or fibromyalgia. The area of discomfort also can interfere with making the correct diagnosis. Along with back pain, women also might experience soreness in the neck and peripheral joints, in contrast to men who mainly tend to note back pain.

When to Suspect Ankylosing Spondylitis in Women

Getting the correct diagnosis is critical to getting started on the right treatment. “Clinicians should suspect the disease in women who complain of back pain, particularly when associated with any or all of the following: morning stiffness or stiff back after resting, psoriasis, inflammation of the eyes, frequent canker sores, irregular nails, swelling of the joints, painful joints, particularly shoulders and hips, and frequent abdominal pain and diarrhea,” said Ali D. Askari, MD, chief of the rheumatology division at University Hospitals Case Medical Center and a professor at the Case Western Reserve University School of Medicine in Cleveland.

Symptoms also should be carefully studied. For example, back pain from ankylosing spondylitis typically lessens with movement and exercise and gets worse with rest — a feature that sets it apart from some other ailments, like degenerative arthritis.

The Progression of Ankylosing Spondylitis in Women

Anyone with an ankylosing spondylitis diagnosis is naturally concerned about what comes next, but “there is no set course for this disease,” Dr. Tehrani explained. “It is variable in every individual, whether male or female.”

Most often, people with ankylosing spondylitis experience flares — painful episodes — mixed with times of remission when symptoms lessen. As the disease progresses, some of the vertebrae in the spine may fuse together, which makes the back more rigid and at greater risk for fracture.

How Ankylosing Spondylitis in Women Is Treated

Treatment options are similar for women and men. Medications for ankylosing spondylitis symptoms include non-steroidal anti-inflammatory drugs (NSAIDs) as the first line of attack to help address stiffness, neck pain, and back pain in women. When something stronger becomes necessary, most doctors turn to disease modifying anti-rheumatic drugs like corticosteroids and sulfasalazine. Biologics or TNF blockers are the latest additions to the treatment option arsenal.

Exercise also is important to retaining flexibility and keeping pain at bay. For example, Pilates has been shown to improve physical capacity and endurance in ankylosing spondylitis. A physical therapist can offer other suggestions.

Maintaining good posture, using heat to reduce soreness and using cold to lessen swelling also can help. Those with very serious cases might need to consider surgery.

Regardless of your symptom level, it’s important for women — and for men, too — to see a rheumatologist at least once a year to make sure you aren’t developing any other issues

Source Everyday Health