Tag Archives: Ankylosing spondylitis

Talking about me and AS

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About 2 months ago, a person that I like and respect a lot contacted me, he wanted me to give a speech to a public of about 300 people. But he was smart he didn’t tell me that my audience was so big, and he knew I wasn’t talking anymore so often in public.

I accepted his invitation even it was hard time for my health, the comorbidities for my AS are bothering me a lot in this period, but I wasn’t afraid, and I faced 300 people in a conference room I went through a guided speech interview and I talk about me and my disease. It was the first time in front of my husband, that was there.

Some tears came up when I remembered the hard time with the pain, and the fear of do not walking and be not any more auto sufficient. I talked to that public and the public responded good people came over to talk to me asking me question, I went straight to their feeling just being me and tell them about my story.

This is something I wanted to share, and I want all of you that land into my page to do not be afraid and fight the diseases. Fight, we have treatments, but above all we are lucky because we can still do many things.

Enjoy Life.

 

Tango and Ankylosing Spondylitis

 

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Hello everyone, has been a while since my last article, I know but my life since I’ve got married is so full that I spend less time by the computer.

Today I’m back to write you about my experience trying to approach tango classes with my husband.

I want to touch to 2 point in my article that people with rheumatic disease can know very well.

  1. When you have a rheumatic disease usually people loose their partner and friends, me with a rheumatic disease I got married so let say I won on this! ūüôā¬† Regarding friends, I understood which one is worth to take with me!
  2. The second point is very close to point one is about love, believe me if it is hard for a couple without health problem think about me how hard can be, but you know what you have to believe it and trying to grow day by day with your partner. Now you are thinking so what about Tango…….

Here it start my today blogging, one of these bad period that everyone have, my husband look into my eyes and said what about thinking about having tango class together, my first reaction was oh my God, my husband the one who had so much hard time to dance during the weeding is asking me to go to tango class? It was a MIRACLE. Than few seconds ready I start to activate my brain and I thought what about if I can’t if my body will be sore or I’m so rigid because AS that I will look silly… But I already I said yes to him the only thing was trying and see if those classes can fit for us.

At the end of everything I can say the class are amazing, people are amazing, and after 6 months we are keeping going to class together, we love to rehearsal at home we love the feeling that we have dancing together. Tango class is our moment, even I’m not good as my husband has reveled (he is one of the best in out beginner class)¬† he is there with me to hold me when I can’t make on my heals.

So tango, in my opinion can save your relationship with your partner, can teach you a right posture and above all makes you feel good and connected with your partner.

 

5 Tips to travel this summer for people with rheumatic diseases

woman meditating on tropical beach in the caribbean

Vacation for ¬†everyone is relax, for us with our diseases must be only ¬†relax…. is that true?

The truth is  that a vacation has to be spent  at the best, no matter if  we go  to the beach, to the mountain, to visit nice  cities  around the world.

What  do we have to remember:

  • Don’t forget ¬†your medication and ¬†have a certificate that state you have to take them. There are some airlines specially low cost that can give you problems in case you carry biologics treatments. Remember ¬†your medications and all your papers must ¬†travel ¬†with your carry on.
  • If you ¬†book a long trip make ¬†sure you can reach your final destination maybe in more than one step ( i.e. I had to go ¬†from south Italy to Guam I decided to have ¬†a stop over in South Korea so I rested and I visited Seul and follow ¬†my trip) Instead ¬†to travel more than 26 hours ¬†I traveled half.
  • If you travel by plane or by train choose an aisle it will be ¬†easier ¬†for you to stand up and move. You know ¬†you cannot be in the same position for long.
  • Ask ¬†for ¬†assistance at the airport at the train station, where ever you are and you go ¬†is your right they will make your ¬†trip easier and help who is traveling with you do not ¬†get stressed during ¬†the vacation.
  • Make plan before ¬†to enjoy every single day of your free time. ( make sure all the opening and closing time, what to see, where to eat).

Ok then so now ¬†you only need ¬†your ticket and you are ready ¬†to go… Enjoy your summer!

A new challenge to live together. Rheumatic diseases explained to children

Dear friends,

I know for the past ¬†2 years I wasn’t present that much, is my fault my busy life with my AS.

Today I’m so happy to share with you this italian project with subtitles in english.

Enjoy and spread .

Thank you

Adriana

Ways to Ease Ankylosing Spondylitis Pain Chapter 2

If you liked my last post … let’s follow :

Keep Moving

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Your number one defense against spondylitis pain and stiffness is to get moving. Rest and couch-potato inactivity allow your joints to start fusing together, which is what you need to avoid with ankylosing spondylitis. Ruth Kadanoff, MD, professor of rheumatology at the Loyola University Stritch School of Medicine in Chicago, says, “The type of movement is not as important as the frequency. You need to be doing some type of exercise twice a day. The best exercise is a low-impact type of exercise like walking.” Make simple exercise a daily habit, just like brushing your teeth, and you‚Äôll be well on your way to relieving lower back pain.

Get Physical

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The next step after correcting your posture is to follow a more comprehensive physical therapy program for ankylosing spondylitis relief. “We now know that spondylitis also includes an increased risk for osteoporosis and heart disease. That means you can really benefit from a complete program that includes aerobic exercise, range of motion exercise, and strength training,” says Papchristos. Besides targeting lower back pain, bone health, and heart health, a physical therapy program may include deep breathing exercises to prevent your rib cage from stiffening.

 

Take to Water

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Exercises that are good for lower back pain and spondylitis on land are usually even better in a pool. Swimming is a great low-impact aerobic exercise for ankylosing spondylitis. “Studies consistently show that water exercises are the best types of exercise for spondylitis pain and stiffness,” says Papachristos. A survey published in the Scandinavian Journal of Rheumatology illustrates this: Researchers found that the most common exercise for people with spondylitis is walking, but the most effective for relieving pain and the most enjoyable is exercising in a pool. Many gyms offer water exercise classes, or you can ask a doctor or physical therapist for suggestions of exercises to do in a pool.

 

Learn a Mind-Body Exercise

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If you’re mostly familiar with cardiovascular and strength training, exercises like tai chi and qi gong may seem foreign at first, but these wellness disciplines could help you find a better balance between mind and body. Mind-body exercises can help you learn to listen to your body, reduce the stress of spondylitis pain, and avoid injury. According to the National Center for Complementary and Alternative Medicine, these exercises have been shown to improve bone health, balance, prevent falls, and make your heart and lungs stronger ‚ÄĒ all good things for anyone with ankylosing spondylitis pain and stiffness.

Thanks to : Chris Iliades, MD

Ways to Ease Ankylosing Spondylitis Pain Chapter 1

 

If you like me are living with ankylosing spondylitis, you know the back pain and fatigue that are hallmarks of the condition can be unpredictable. But fortunately, there are many approaches ‚ÄĒ besides simply relying on medications ‚ÄĒ that you can take to ease spondylitis pain and stiffness and move more freely. Most of these ideas are free or inexpensive, and even enjoyable to boot. You‚Äôll find that the emotional boost you get from taking these steps can be as great as the physical improvement.

Make Mornings More Manageable

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If you‚Äôre like most people with ankylosing spondylitis, your lower back pain and stiffness is worse in the morning. “When joints are stationary for a time, the joint fluid actually thickens a bit, like ketchup,” says Sturdy McKee, MPT, physical therapist and CEO of San Francisco Sport and Spine Physical Therapy. ‚ÄúYou can shake or stir your joints through repeated movements ‚ÄĒ any repeated movements.‚ÄĚ Talk to your doctor or physical therapist to create a morning routine of gentle motions that can lessen spondylitis pain and get your joints moving.

Hit the Showers

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When the fluids in your joints get thick and stiff, spondylitis pain gets worse. A great way to get those fluids moving is to warm them up with a warm bath or shower, which loosens up your muscles and makes it easier to exercise. In fact, you might find that doing some exercise in the shower can help get you going in the morning. You may also find that doing your posture training for ankylosing spondylitis after a warm bath or shower, when your body is warmed up, is easier for you.

Correct Poor Posture

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Poor posture ramps up spondylitis pain and stiffness. Minimize lower back pain with what medical experts call “posture training:” Think tall by keeping your head balanced and your back straight at all times, and practice standing with your back against a wall and prone lying, which is lying face down on a firm surface. A physical therapist can show you the ropes. “Posture training should be done for about 30 minutes every day, but you can break this time up into 10- or 15-minute sessions,” says Angelo Papachristos, a physiotherapist at St. Michael’s Hospital in Toronto, Ontario, Canada.

Special thanks  to : Chris Iliades, MD

Food/ Diet & Ankylosing spondylitis

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Whether a person is affected by a chronic illness or not, there are some straightforward guidelines that if followed, would lead to improved health and well-being for almost everyone. Both calcium and alcohol affect the strength of the bones, and it is a well known fact that people with spondylitis are already at higher risk for osteoporosis, a dangerous thinning of the bones that can lead to fractures. Following a diet with adequate amounts of calcium and vitamin D will help reduce the risk of osteoporosis. Alcoholic beverages can also weaken bones. Consuming more than two alcoholic drinks per day increases a person’s chances of developing weakened bones. In addition, alcohol mixed with certain medications can cause serious side-effects to the gastrointestinal tract and to major organs such as the liver and the kidneys. It is important to find out from your doctor whether any of the medications that you take affect how your body uses what you eat. For instance, some medications cause a person to retain sodium, while others cause potassium loss. Methotrexate can lower folic acid levels causing a variety of adverse symptoms which can be offset by taking additional supplements. Whatever you decide, expert agree that there are basic guidelines to good nutrition, which are: Eat a variety of foods that make you feel good – avoid those that do not. Eat plenty of vegetables, fruits, and whole-grain products. Use fat (especially saturated fat found in animal products), cholesterol, sugar, and salt in moderation. Drink 8-10 glasses of water a day. Most people receive daily requirements of vitamins and minerals by eating a well-balanced diet, but others need to take vitamin supplements. Avoid alcohol or foods that can interact with your medication. Talk with your doctor and/or pharmacist about potential interactions.