Vitamine Sea ooppsss D & Exercise

All my friends and followers in Facebook have already seen this pic! Is not about my pic of course is about us trying to exercise and be more flexible as we could.

I live in south Italy and I’m lucky to have a lot of sunny days so I can expose myself almost daily to the sun to have my dose of Vitamine D and you ? Do you take some time for you to enjoy the sun even during the winter ? Can you find 30 min in your day to catch the sun ? I try even in my small balcony and it works!

I’m sure I’m lucky to live few minutes driving from the sea side, but if you live far do you exercise ? I do in the water until I can usually from april to end of october, some season in november, and after that I exercise after work. I’m not going anymore to the gym to tell you the truth, for many reasons, but my lovely husband helps me in a training and he trains too.

And you ? Are you able to do some fitnessr? You do not have to do much to stay healthy and believe me if you do it with your husband or wife with a friend or someone from your family is a nice way to do it. Try it or give me your feedback.

Talk to you soon!

 

 

 

Do you have trouble speaking ?

Have you ever experienced trouble during your speaking?

I do speak 3 languages and I do speak a lot, but sometimes I feel I can’t talk I can’t speak, like my brain is working and my tongue is not reacting in the correct way.

I was reading online that can happen, and is not a brain condition, my sensation is like my jaw can’t move and I can’t speak. And you maybe you would like to share with me your experience maybe I’m not the only person with AS having this!

I questioned myself, can be stress, because this do not happen everyday, but quite often when I’m nervous or concerning about something is going on in my life.

My solution is, apply yoga breathing and trying to relax, and you ? What do you do ? Other of my concerning is can this be also caused from using some medication? Should I change something in my diet? Should I change my routine? What should I do to feel better?

The sensation I have is feeling trapped !

Let me hear from you and your experience!

Talk to you soon …..

Did you enjoy your summer?

 

 

Hello everyone,

as I promised here I’m, to tell you about my summer and above all to know about yours.

My summer started just after they let us free after the lockdown, I moved to my grandma beach house and I’m still here and I’m working from here.

No bad at all, have the opportunity to jump into the water everyday after 6 pm. During my real vacation I went to Abruzzo region and I enjoyed a lot walking and exploring new historical towns.

Because remember exercise is good for people with our diseas. So my summer was very simple, working from home, walking swimming and enjoying my family!

What about yours?

Comment here 🙂

Covid 19

Everything started with a seasonal flu!

How many of us were thinking that! Me for sure….

After few weeks from the China Corona Virus Alarm, Italy my country was hardly hit it! Our family in Italy and all around the world was listen to the scary news we all went into a deep lockdown and our everyday life has changed.

The day that everything changed for me was March 9th 2020 all my routine all my habits all my dear one far away. All the hospital here in Italy were super busy taking care of Corona Virus Patients and us ? Patients with Rheumatic Diseases? Oh well, I personally I was lucky my Rheumatologist and my family Doctor answered to me all the time for any need! And you not only in Italy all over, I would like to hear from you, Please live your comment…

Talk to you soon….

Sometime I come back ….. Welcome back to me !

Hello everyone,

yes sometimes I come back. Has been a rough period, no time to dedicate to my blog, because I have to work has just like everyone else and with the disease even my wonderful husband helps a lot is almost impossible to dedicate time!

I’m scheduling new blog’s articles where I can tell you about my personal situation with this worldwide pandemic situation.

Hopefully you will like it.

I want to say thank you to all the people they where keeping writing me even I wasn’t posting for long time.

I see you soon online

 

Talking about me and AS

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About 2 months ago, a person that I like and respect a lot contacted me, he wanted me to give a speech to a public of about 300 people. But he was smart he didn’t tell me that my audience was so big, and he knew I wasn’t talking anymore so often in public.

I accepted his invitation even it was hard time for my health, the comorbidities for my AS are bothering me a lot in this period, but I wasn’t afraid, and I faced 300 people in a conference room I went through a guided speech interview and I talk about me and my disease. It was the first time in front of my husband, that was there.

Some tears came up when I remembered the hard time with the pain, and the fear of do not walking and be not any more auto sufficient. I talked to that public and the public responded good people came over to talk to me asking me question, I went straight to their feeling just being me and tell them about my story.

This is something I wanted to share, and I want all of you that land into my page to do not be afraid and fight the diseases. Fight, we have treatments, but above all we are lucky because we can still do many things.

Enjoy Life.

 

Tango and Ankylosing Spondylitis

 

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Hello everyone, has been a while since my last article, I know but my life since I’ve got married is so full that I spend less time by the computer.

Today I’m back to write you about my experience trying to approach tango classes with my husband.

I want to touch to 2 point in my article that people with rheumatic disease can know very well.

  1. When you have a rheumatic disease usually people loose their partner and friends, me with a rheumatic disease I got married so let say I won on this! 🙂  Regarding friends, I understood which one is worth to take with me!
  2. The second point is very close to point one is about love, believe me if it is hard for a couple without health problem think about me how hard can be, but you know what you have to believe it and trying to grow day by day with your partner. Now you are thinking so what about Tango…….

Here it start my today blogging, one of these bad period that everyone have, my husband look into my eyes and said what about thinking about having tango class together, my first reaction was oh my God, my husband the one who had so much hard time to dance during the weeding is asking me to go to tango class? It was a MIRACLE. Than few seconds ready I start to activate my brain and I thought what about if I can’t if my body will be sore or I’m so rigid because AS that I will look silly… But I already I said yes to him the only thing was trying and see if those classes can fit for us.

At the end of everything I can say the class are amazing, people are amazing, and after 6 months we are keeping going to class together, we love to rehearsal at home we love the feeling that we have dancing together. Tango class is our moment, even I’m not good as my husband has reveled (he is one of the best in out beginner class)  he is there with me to hold me when I can’t make on my heals.

So tango, in my opinion can save your relationship with your partner, can teach you a right posture and above all makes you feel good and connected with your partner.

 

5 Things People With Rheumatic Diseases Want You to Know

 

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  1. Just because I look fine and I smile doesn’t mean I’m: I know I look  wonderful the expression of health… I call it cortisone or biologic!
  2. Mine is not just a pain and  rheumatic diseases are not only related to old people : I know when I say my back hurts or my legs or any part of my body hurts you say c’mon you are not old
  3. A nap some days can help me do not make fun of it: there are some  days that i really need a nap I need to rest my entire body, and you thing I’m spoiled!
  4. Be on a diet or taking more pill will not cure me: only few can understand that i be on a special diet such gluten free, vegan or taking all the pills for arthritis pain will cure!
  5. My pains affect not only me but everyone in my family: my pains affect all the people that live with me, because  they have  to deal with me in good or bad! That’s why mom and dad can understand you but make sure you choose the right husband like I  did 🙂

 

5 Tips to travel this summer for people with rheumatic diseases

woman meditating on tropical beach in the caribbean

Vacation for  everyone is relax, for us with our diseases must be only  relax…. is that true?

The truth is  that a vacation has to be spent  at the best, no matter if  we go  to the beach, to the mountain, to visit nice  cities  around the world.

What  do we have to remember:

  • Don’t forget  your medication and  have a certificate that state you have to take them. There are some airlines specially low cost that can give you problems in case you carry biologics treatments. Remember  your medications and all your papers must  travel  with your carry on.
  • If you  book a long trip make  sure you can reach your final destination maybe in more than one step ( i.e. I had to go  from south Italy to Guam I decided to have  a stop over in South Korea so I rested and I visited Seul and follow  my trip) Instead  to travel more than 26 hours  I traveled half.
  • If you travel by plane or by train choose an aisle it will be  easier  for you to stand up and move. You know  you cannot be in the same position for long.
  • Ask  for  assistance at the airport at the train station, where ever you are and you go  is your right they will make your  trip easier and help who is traveling with you do not  get stressed during  the vacation.
  • Make plan before  to enjoy every single day of your free time. ( make sure all the opening and closing time, what to see, where to eat).

Ok then so now  you only need  your ticket and you are ready  to go… Enjoy your summer!

Partner or not…. “Diseases the problem”

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Hello  everyone,

my post  today is regarding us with rheumatic diseases but even regarding all the people with  rheumatic diseases, they can be women or men doesn’t matter.

I read  in a lot of  forum that couple  broke up after one of the partner get sick and need help or just need  to be understood. This is  so bad and of course upset us so much….

But at the same time  we can realize that the person we have  chosen is not the right one, rather you got married  in a church or not  the sentence “for better or for worse in health and disease”  is completely forgot from who in the couple is not sick unless the love is  REAL and  DEEP.

So what to  do ?

be focus on us  try to be better as we can and let him or her go we do not  deserve more pain!

Another advise ? I’ve got married this year at 42  years old, and my love  took  me and my pain in one  shot, he knows it can  worst but he knows i’m a warrior.

Be a  warrior be focus on you and  if your partner is not  good to be next to you, just CHANGE IT !

Waiting for your comments…

Wish you a flare free week.